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Brochure 2020

beginning of a research project and thereafter there is almost no further interaction between data provider
and research team in terms of consent. As health data continues to expand, the formats by which health
data is presented may also change. Therefore, data providers may need to adjust their consent accordingly.
The design of a consent mechanism should incorporate flexibility, integrity and traceability. The system
architecture is illustrated in Figure 4 below.

1 2 3. Update database

1. Set Consent 2. Send to server

Resource Owner (RO) 4. Display updated consent 3. check consents

User Interface

Authorization Server (AS) MS SQL Server

1. Apply for data 2. Send to AS 3

4. Retrieve consented data

Requesting Party(RP) User Interface

Resource Server (RS)

6. Inform FHIR server 4
requesting party
5. Store requested
data in FHIR
format

Figure 4 : System architecture for a stroke app.

4. External Research Project

"Decoding the Neurological Mechanism of Emotion Expression in Language Communication" (funded by
MOST)
Project number: MOST 108-2321-B-009-006-MY2

5. Build Data Repository

The Mei-Chao health examination datatset has been acquired and, following an IRB review and negotiations
with Mei-Chao, researchers in IIS can use this dataset for their research, only paying requisite fees for the data
actually utilized. We plan to incorporate other data sources to build an integrated research environment.

6. Conclusion

We have found that organizing interdisciplinary gatherings and discussions is the most cost-e ective way to
facilitate collaborations. Establishing a data repository has the potential to lower initial barriers to cooperation,
but it requires dedicated resources and adequate planning.

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