This talk will be about the ethical imperatives and challenges ofsharing individual health research data particularly data generated in low- and middle-income settings. The speaker will share findings from recently completed qualitative studies around data sharing (such as broad consent) and her experience as a coordinator of a Data Access Committee.
Dr Phaik Yeong Cheah (BPharm, MSc (Bioethics), PhD) is an Associate Professor at University of Oxford. Since 2015, she has been the Head of Bioethics & Engagement at the Mahidol Oxford Tropical Medicine Research Unit (MORU) based in Bangkok, Thailand. She is also the coordinator of MORU's Data Access Committee. Her research interests are ethics of conducting health research in low-resources settings, data sharing and the interplay between ethics and community engagement.
In 2015, she led the writing of MORU's Data Sharing Policy and set up the Data Access Committee . She has also published studies on sharing of data generated in low- and middle-income settings. Before taking on the role as head of Bioethics & Engagement, she was the Head of Clinical Trials Support Group (CTSG) at MORU. She set up a data management team within CTSG. The team which has grown from strength to strength, now routinely takes the lead of the data management lifecycle activities from data collection tools development to execution and supervision of data management plans.
Before moving to Bangkok, she worked at the Clinical Trials & Research Governance office in Oxford. Phaik Yeong started working in clinical trials in 1998 when she started her PhD work on chronic prostatitis in Penang, Malaysia.